PICU Days 1 & 2 in Photos with Update

~Settling into our PICU room late Monday evening~

~A very big bed for a very little person~

~Trying to get comfortable~

~Not too sure about all this!!~

~Nice, large room {we can stay with her at all times!!}~

~Finally being allowed to eat again this morning~

~Just finished the last bottle for today & starting to act more like herself~

Noelle had an encouraging day overall today, and they have already been able to take some great strides medically.  They turned off her nitric oxide and transferred her to the oral drug, and she seems to be tolerating it well so far.  They have also been able to wean her oxygen today, although she is still on a high flow rate and still has some distance to go before transferring back to the lower rate cannula she was using at home.  The medical team is hopeful that she will be able to transfer out of the PICU tomorrow into the step down cardiac unit, where they will continue to monitor her heart as she adjusts to the new medications before coming home.  We still do not yet know what we are facing long term, but no one seems to know at this point; and we will just have to wait and see how her body continues to respond to the current treatment.   We will update again tomorrow, hopefully with some good news of progress.  As always, thank you for your love and support and most of all, your prayers.