Thursday, December 13, 2012

Drum Roll, Please....

Since returning from Thanksgiving, it has been so enjoyable to feel as if we are truly settling into this lock down period.  No appointments were scheduled for several days in a row; and while our lives seemed no less busy, it was nice to keep our little girl at home and attempt to create a consistent standard of normal around here.  Well, it was fun to try anyway!  Noelle, as social as she is, seems to enjoy being in "her space" and not being dragged out of the house multiple times a week, and I am glad to see that her personality does not seem to be hindered in any way as we keep her from people during this sick season.  Thankfully, her appointments have begun to space further apart as she continues to improve in various different areas of health and does not need to be seen as often, but because so many specialists follow her, it is impossible to avoid them altogether through this entire lock down period.  Since her early NICU days, we were cautioned that she would most likely need different forms of therapy upon discharge.  Premature babies often struggle with gross and fine motor skills, speech, and various other types of developmental milestones since they entered the world in such a traumatic way and spent so much time in an unnatural environment as their bodies matured outside the womb to a stable status.  We have been blessed that Noelle has not struggled in several areas that we expected, but she was not able to bypass them all; so when we were told it was time for her to begin physical therapy, I was not surprised.  She had an initial appointment at a rehab center {which put my heart in my throat from all the people and germs present!}; but after that first evaluation, we were told she qualified to have in-home therapy sessions, which we began nearly two weeks ago.  I must admit that I was overwhelmed at the end of the first session in our home, but it was from an encouraging standpoint.  For while there were many things wrong, I was being given the tools to help Noelle and hopefully fix the problems without seeking extreme intervention.  Already, I have been very excited to see improvement in several areas, just in a matter of days.  Things that she has been trying to do for weeks, such as sitting on her own, are all of a sudden beginning to become reality.  It has taken a change in the way we act and think {for example, we now must hold her in a different way than what is "normal" or comfortable, and she must wear specially formed inserts in her shoes}, but these little actions add up through the day and result in progress gained, which is very encouraging to see.  It means that we should be able to avoid things like custom made shoes for her currently turned out feet or braces to help her walk.  We have been more than willing to consider any of these things, but we are also grateful to be learning how to help Noelle reach new milestones without taking extreme measures. 

However, at one of her appointments this past Monday, we discovered that there is one "therapy" we will not be avoiding; and that would be...{drum roll, please}...
~Getting Fitted for New Glasses~
... a set of tiny glasses. 

Although she is doing quite well and compensating for her inability {considering her ROP issues and previous surgery,},Noelle still seems to be nearsighted and allows one eye to move out of sync with the other when she is tired or distracted.  It is nothing serious {especially since we were originally facing the possibility of her going blind}, but we do want to act on it as soon as possible since her eyesight affects areas of her brain development as she is learning images and attaching recognition to them in the state which she currently sees them.  We would prefer that she accurately be able to view things and thus send the correct identification messages to her brain.  On the advice of our opthamologist, we are selecting frames that are practical and comfortable for her little face and will save the adorable frames for a later time {although this mommy is still exploring possibilities of making these just a little cuter).  Her glasses will look a little differently than what you see in the photo since these are simply for fitting purposes; but in another four to six weeks, tiny spectacles will begin to adorn this sweet face during all waking moments.  I think that she just might like them...

8 comments:

  1. Ah she's adorable with those little baby glasses. I sure am glad for my glasses, and I'm sure she will be so happy to see and learn things correctly!

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    1. Thanks, Katie!! I too am excited for her to see things clearly and wonder how it will affect her once we receive them...should be fun!!

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  2. Adorable!!!!!!! They will make a big difference. Byron got his first pair of glasses at age 3. I had no idea how bad his vision was. He came home a new child so excited about trees having leaves, the pictures in our house, and even excited about the mustard bottle having a hot dog on it. I cried, but the opthalmologist (Dr. Young who rocks by the way) said that he didn't know any different.

    I am glad she sis doing well with her PT.

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    1. Awww there is no way you could have known! If you asked me, I would tell you I think she can see very well based on how she responds to us. If she hadn't had eye surgery in February, we probably would not find out until much much later that she needed glasses...a blessing in disguise! I'm so glad your little Byron can now see so well!

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  3. She is a sweetie! Will the glasses be hooked on so she can't take them off? I'm assuming she is still "feisty." :-)

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    1. Haha! She definitely is still feisty although she is also a very good baby. The glasses do have a band across the back, although I'm sure she'll still figure out how to get them off :-)!

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