Today was a fairly uneventful day, and progress was made through weaning of the nitric oxide and the high flow nasal cannula. Noelle should be completely off the nitric oxide by tomorrow morning, and she is currently on 2 liters through the regular nasal cannula, and we hope to continue to wean that before going home {we do not expect to wean completely off the oxygen but hope she is able to do well with less support than she is currently receiving}. If she tolerates the absence of the nitric oxide, then the milrinone will be weaned through the weekend, and she can move out of the PICU. She will then be monitored to be certain she is tolerating all of her medications well, and she will start taking her feeds by bottle again. We will still be here for several days, but I think discharge may come sooner than everyone thought possible. However, one day at a time; and for now, we are enjoying the little things we are able to do again to mimic her schedule at home when we have opportunity. She enjoyed a partial bath tonight {we cannot submerge her since her heart catheter sites are still bandaged}, and we were even able to maneuver her various cords so that she could slip her arms through her little sleeper, partially wearing it and making her more comfortable for bed tonight. I will post the rest of the day in a video and pictures. Her poor little voice is so hoarse from the ventilator tube, but it makes her cry that much cuter to us!! As always, thank you for your persistent prayers; and we hope to report more great progress tomorrow.
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| ~Getting all the tubes & cords situated after the bath~ |
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| ~Precious Smile actually caught on camera!!~ |
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| ~Silly Face~ |
~Noelle telling us about her hospital stay~
Today was a fairly uneventful day, and progress was made through weaning of the nitric oxide and the high flow nasal cannula. Noelle should be completely off the nitric oxide by tomorrow morning, and she is currently on 2 liters through the regular nasal cannula, and we hope to continue to wean that before going home {we do not expect to wean completely off the oxygen but hope she is able to do well with less support than she is currently receiving}. If she tolerates the absence of the nitric oxide, then the milrinone will be weaned through the weekend, and she can move out of the PICU. She will then be monitored to be certain she is tolerating all of her medications well, and she will start taking her feeds by bottle again. We will still be here for several days, but I think discharge may come sooner than everyone thought possible. However, one day at a time; and for now, we are enjoying the little things we are able to do again to mimic her schedule at home when we have opportunity. She enjoyed a partial bath tonight {we cannot submerge her since her heart catheter sites are still bandaged}, and we were even able to maneuver her various cords so that she could slip her arms through her little sleeper, partially wearing it and making her more comfortable for bed tonight. I will post the rest of the day in a video and pictures. Her poor little voice is so hoarse from the ventilator tube, but it makes her cry that much cuter to us!! As always, thank you for your persistent prayers; and we hope to report more great progress tomorrow.
SO glad to see how she is improving! love the pics & the video, loving hearing her little voice.
ReplyDeleteOh, Jill! Such precious video footage of your tiny miracle baby! We rejoice in hearing good news and "uneventful" days! Praying for you and sending hugs! The Olson family
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