Sunday, July 1, 2012

PICU Day 7 ~ (July 1, 2012)

Today was another day of waiting as we did not receive any answers yet in our request for information from Boston.  It appears it will take longer than we originally thought since some of her files are so large, they cannot be sent electronically but must be physically sent up to Boston.  We are seeking some information through a couple more avenues, but it is very possible that we will continue to proceed as originally planned with the heart catheterization on Tuesday and gain as much information as possible before making any further decisions.
~Listening to Aunt Donna singing sweet lullabies~
In the meantime, Noelle had a fairly good night last night with fewer desats than most other nights this week.  Today she was a social butterfly as several people from our church visited us {a huge encouragement to us!}, and her Aunt Donna from Forsyth came to see her and soak up some snuggles.  We have been so blessed to have the input of our FMC family through this process.  While Noelle no longer lives in the NICU, they still keep up with her and care for her as their own, and their advice holds a lot of weight with us as they love Noelle and have her best interest at heart.
~So comfy in such familiar arms~
We know that God will guide and direct us, showing us His desired path for us in this process; and if He chooses for us to make this transition to Boston, then He will pave the way and make things clear.  We will continue to keep everyone posted as we are informed of each new step in this process, and we truly appreciate your prayers for wisdom and guidance as we walk this path of so many unknowns {unknown to us, but thankfully not unknown to Him!!}.

1 comment:

  1. We prayed for your family today in church and our kids continually remember to pray that the Lord might bring healing to Noelle! Might He also grant you peace in all of these tough decisions and good rest even with everything so hectic for your family!
    The Olsons

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