 |
| ~Daddy's Girl~ |
Today did not bring any new information as far as a transfer to Boston is concerned, but we still made headway with some communication and hope to have some feedback from them by late tomorrow. One of Noelle's current cardiologists contacted a specialist in Boston that has expertise in pulmonary hypertension combined with cardiac issues, and he should be contacting us personally with some information as soon as he has the opportunity to review Noelle's records {well, the summary of them anyway...the actual records literally fill several large 3 ring binders!!} I spoke with this specialist's office today a couple of times and was very encouraged by their helpful attitudes and the time they spent with me on the phone.
 |
| ~Playing with Daddy~ |
Whether or not we transfer there, the second opinion is still valuable to us; and we are also thankful for the open attitude of the medical staff here with this request of ours in pursuit of the best care for our daughter. They have been extremely understanding, and most of them have stated that they would do the exact same thing if they were in our position. Because we are still waiting on these answers, the heart catheterization that was scheduled for tomorrow has been postponed {possibly to Thursday}. No one wants to put Noelle through an extra procedure if Boston takes one look at her records and feels that they should perform the heart catheterization themselves. However, there are still many unanswered questions without the information from the heart catheterization and extra hurdles to cross without a confirmed diagnosis, and so our hope and prayer is that we can do it here and gain some more information before making the next big decision with her care.
 |
| ~Got it!!~ |
In the meantime, Noelle had the best night {last night} and the best day today that she has had in almost two weeks. She was definitely feeling more like her normal self, and it was encouraging to see her so happy throughout the entire day. It seems the nitric oxide is helping her lungs once again, and the current plan is to leave her on it until she gets through this next procedure. God has been incredibly gracious to us and sent us much encouragement, especially through these past couple of days as many friends from our church and nurses from FMC have visited us. I truly miss being able to attend church and enjoy fellowship with our brothers and sisters in Christ; but we also know that this is for a season and do enjoy the times we have with others in the meantime. It is an incredible encouragement to our hearts; and in a strange sense, it gives us a sense of normalcy amidst the ever changing situations we are currently experiencing. Our hearts never cease to be grateful for your love and prayers for us~it is a comfort and joy to us amidst the storm.
No comments:
Post a Comment