Showing posts with label Growing. Show all posts
Showing posts with label Growing. Show all posts

Monday, November 5, 2012

Giving Thanks Challenge ~ {Day #5}

Thanksgiving Challenge ~ Day #5
Topic: Noelle
Title: Growth

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}
  
For this challenge, I have encouraged many of you to choose something that is currently a trial in your life and focus on aspects of it for which to be thankful; and because I myself have some of those challenges in Noelle's situation, I will be weaving in some of these items during this thirty day challenge.  
 
To be completely honest, I still have days where I struggle with Noelle's overall lack of growth.  For a mom of a micro-preemie baby, it can be stressful to adhere to a strict feeding schedule, attempting to cram as many calories possible into my baby during the day, and yet still yielding such small results for my efforts.   It has gotten easier.  Each pound that we have reached has lessened the stress level, but I think I often feel personally responsible for her growth, or lack thereof.  Of course the severe reflux has not helped issues along the way since we have had to experiment with her intake and medication levels in order to try and keep food down; and she is also burning a lot of calories during her waking moments since she never.stops.moving!  A hand is always waving or a foot is constantly kicking, and these are things we would never want discourage, especially developmentally.  Until last week, I thought we had finally crossed a hurdle.  Noelle had finally averaged a pound per month by her ten month birthday and had experienced her best two month growth period ever.  We made it past the sleep study and seemed to have the reflux mostly under control, and I really thought we would finally cruise a little faster, or at least maintain a more consistent growth rate.  But all of that changed at her appointment last Monday when we discovered she had gained only five ounces in three weeks, weighing 10 lbs./4oz.  Making it even harder, I know of so many other micro-preemie babies who, once they reached "term" and arrived home, started growing like weeds; and now you would never guess that they spent months in the NICU when they were first born.  So there have been discouraging moments and days, endless efforts, additional feedings, various sleeping positions, and even tears; but in the end, I have to remember that Noelle's growth is not my responsibility.  It is God's.  Of course this does not negate my responsibility as a mother to feed and care for my little girl; but ultimately, God is growing Noelle, not me.  He has determined her size and weight and her "normal," and I must relax and remember that her growth and progress will not happen by the chart.  So instead, I choose to focus on God's continued goodness, especially in her growth, and never forget the place in which we started.  Today, she weighs 10 lbs./8oz.; but in perspective, she weighs 168 ounces or 14 times her birth weight!!  Now that is something for which to be thankful!!

***Do not forget there are less than two weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Saturday, July 21, 2012

Growing On Up

~Incredibly Happy Girl~
While this first, full week home has been a time of adjustment, it has mostly been a time of joy and amazement as our tiny girl seems to be growing right before our eyes.  She weighed 6lbs. 7oz. at her doctor appointment on Monday, and I am excited to see the comparison when we go for her next weight check this coming Tuesday.

~Just so sweet~
~I LOVE to play!!~



Although I would have termed Noelle a happy and content baby before this last hospital stay, there is now a marked difference in her; and the smiles hardly seem to leave her face!  It seems that each day brings more activities, new discoveries, more "talking", and so much growing in both size and development.  It has made us realize how poorly she was probably feeling for quite some time~especially since one of the signs prior to her heart failure was that she was no longer smiling and talking; and she is doing those things so much more now than ever before.

~Aunt Donna dropped by for some snuggles~

Now, the difference is incredible, and many people have remarked how much change they can see in her pictures...imagine the difference we see in person!  This does not mean we are "out of the woods" by any means, but it does demonstrate the effectiveness of her treatment and current medications; and we are very thankful for the close follow-up care she is receiving from our medical team, as well as the continued advice and care from our FMC NICU family, who continues to follow her progress and makes suggestions and voices concerns and thoughts with her care.  It is comforting to have the support and advice from people whom we love and trust and who know our daughter's history even better than ourselves.  Knowing that they have held "mini-rounds" on Noelle with the blog information and multiple texts and phone calls, speaks volumes of their continued love and care for our precious girl.



~Milestone!!  I'm starting to push up consistently!!~
~"I love my new WubbaNub!!"~
Noelle celebrated her first week home by starting to push up (she had done it in the NICU a few times, but only when VERY upset about something being done to her),  getting a WubbaNub (a soothie pacifier with a beanie attached to help her hold it in her mouth--regular pacifiers still choke her), smiling all the time, playing uninterrupted, and sitting up in her Bumbo for the first time! 

~First time in the Bumbo...what a big girl we have now!!~
Bob Buckley with FOX 8 will be doing another update story which is set to air tomorrow night during the 10:00p.m. news.  As always, you can watch it livestream here, or the clip will be available online after the news airs.  We are continually amazed at the relationships that God continues to develop through this situation and are thankful for the wonderful job that Bob and his photographers, Eric and Ferlon, have done through these past months, portraying the story in a way that God receives the glory.  As always, thank you for continuing to pray and for sharing in our joys with our sweet girl.