Giving Thanks Challenge ~ {Days #10-12}

Thanksgiving Challenge ~ Days #10-12

Topic: Noelle
Title: Great Grandparents, Our Church Body, & Noelle's Medical Team

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}

I am woefully behind on posting yesterday and today, and with an extremely busy week being already underway, I have decided to catch up the posts on which I am behind, as well as get ahead by one post and include tomorrow's thankfulness challenge.  Unfortunately, this may happen a few times over the next couple of weeks, due to our schedule; but my heart and mind are still dwelling on this challenge, even if I do not have the time to write it out each day.  Thank you to all who have commented and participated along the way.  You have been a blessing to me!

Day #10: Great Grandparents

~Four Generations (Noelle: 4 months old)~

Many children are blessed to have loving grandparents, but few are privileged to meet their great grandparents.  I was one of those few, being the daughter of very young parents and grandparents. The memories I have of my great grandparents are not many, but they are precious to me; and I am thankful for the heritage they have left in my family.  I still have one great grandma living who will {the Lord willing} be visiting and meeting Noelle next week; and we are eagerly anticipating the opportunity to spend time with her and capture a five generation picture {which I am sure to cherish forever}.  This will be possible since my mom now resides here, and her parents {my grandparents / Noelle's great grandparents} live within a two hour distance; so we are blessed to see them fairly often.  I do not know how much time the Lord has given to us with them, but I am grateful for the opportunity that Noelle has to grow up near them and know them.  They are incredibly special people in our lives; and every time we visit, we envision Noelle one day walking hand in hand with them through the vegetable and fruit gardens, sneaking a bite of a plump, red strawberry or a juicy blueberry, gently tossing feed to organically raised chickens, or swinging on the porch in the summer breeze.  G-Pa and Gigi are very much loved, and we thank God for the opportunity to live so close and spend time with them!

~The Boyers: One of many, always ready to answer our call~

Day #11: Our Church Body
Throughout the course of the first several months after Noelle was born, we were often asked if we had family in the local area, causing smiles to cross our faces.  "Yes and No" was always the reply, followed by a short explanation of the fact that we did not have blood-related relatives in the immediate area; however, we did have our church family, and they were supporting us in ways we had never even imagined.  While one friend organized freezer meals, another picked up lunch and brought it to us at the NICU.  Others "kidnapped" us for an hour to escape the hospital and grab a bite to eat, and still more provided gift cards for gas, food, and other needs we had not even stopped to consider.  This and so much more was done for us; but beyond the physical needs for which they cared, the spiritual needs were met as well while they earnestly prayed, visited, sent notes and cards, and encouraged us in every way possible during our journey.  Of course there were many who did some of these things from long distance as well, but there is something special about having that connection with someone nearby, someone who will pick up the phone at any hour of the day or night and drop everything they are doing to get on their knees and pray or come and sit with you at the hospital as you wait for your child to go through surgery....again.  Our blessing was that this "someone" was not just one single person.  We had and still have an entire list of these "someones" who have made themselves available to us for absolutely anything we might need and more.  Anything I could say here would never be adequate enough to thank our church body for all that they have done and continue to do for our family.  We are blessed beyond measure to belong to a body that truly endeavors to practice Christ-likeness to others in a very tangible manner.  Thank you, Twin City Bible Church!  We love you and thank God for you all!!!


Day #12: Noelle's Medical Team
As we embark upon a week full of appointments {six, just for Noelle alone...}, I can sometimes become overwhelmed.  Planning and coordinating efforts for this amount of appointments takes some time and preparation, and it is easy for me to choose the wrong perspective and begin complaining.  However, when I step back and evaluate things honestly, I can be nothing but thankful for these appointments and the doctors who care for Noelle, many though they may be.  The plethora of medical team members has been incredibly beneficial to us through these months since our discharge form the NICU; and the combined effort of them all has helped bring Noelle to the point she is today.  I truly like every single one of her doctors and am so pleased with their care and the time they take with Noelle and with us as parents, answering any question we might have.  So although this week will be tiring, I can be only thankful that each one of these people have helped make it possible for Noelle to live at home with us; and all the appointments in the world could not overshadow the thankfulness in my heart for that.  {P.S.  We hope to report some good progress in Noelle's health by the end of this week!}

If you are local and would like to help a relief project for New Jersey this week, please check out this page and do what you can to assist this effort.  

***Do not forget there is less than one week left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #9}

Thanksgiving Challenge ~ Day #9

Topic: Noelle
Title: Oxygen {as in the kind you get from a tank}

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}


Oxygen paraphernalia decorates our home these days as it fills corners and weaves its clear, thick tubing through the living room and down the hallway and into the bedroom, or wherever the little girl who is attached to the end of it happens to be.  A box-like machine creates the oxygen Noelle needs on a constant basis, while a large back-up tank and small transport tanks sit on stand-by for emergency power outages or trips to the doctors' offices.  Although it requires some attention and maintenance once in a while or even some additional preparation time before going somewhere, it has become our normal way of life; and we rarely think twice about it anymore.  Well, most of the time.  There have been times in the past, especially when we first brought Noelle home, that I was much more eager to be rid of this inconvenience.  However, I was also grateful to have her off the ventilator and needing only a very low support of oxygen, so my emotions were somewhat mixed.  But that all changed drastically after her eighteen day stay in the hospital a few short months ago.  After weaning off the oxygen for a short time in April, she had begun a very slow and steady decline; and the lack of additional oxygen, although not the cause, became a contributor for aggravating her pulmonary hypertension flare-up.  Needless to say, between that and all of her sleep apnea and study issues, I have not been nearly so eager to wean her this time.  In fact, I have actually preferred that she have the support.  We are often asked when she will be completely sans oxygen, and our answer is the same as what the doctors say to us, "she will tell us."  It is a standard statement that we often hear with much of her care, meaning that they do not really know and can only watch her little body for signs of being ready to take the next steps.  So we wait {patiently, I hope}; and look forward to her appointments on Monday that may give us the signs of improvement necessary to take another step forward and begin the weaning process once again.  They will do it over a long, slow process this time; but I am grateful that Noelle is able to have this same breathing support at home that she once had in the hospital for so long.  Any amount of inconvenience is entirely worth the effort in order to have our sweet girl home with us at all times.  So while I have not always had this attitude on this particular aspect of Noelle's care, I can thank God that He has changed my heart and made me grateful for both the additional oxygen support for Noelle, as well as the natural oxygen He provides for us every moment of every single day. 

If you are local and would like to help a relief project for New Jersey this week, please check out this page and do what you can to assist this effort.  

***Do not forget there is less than one week left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Eleven Months Old / Giving Thanks Challenge ~ {Day #8}

Thanksgiving Challenge ~ Day #8

Topic: Noelle
Title: Eleven Months Old

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}

~Really, Mom?~

I can hardly believe that I just wrote the title, "Eleven Months Old."  Where has the time gone?  There have been so many days through these months that I have not dared to think beyond the next hour or the next day, let alone dream about reaching her first birthday; and yet, here we are celebrating eleven precious months with our little girl and entering the home stretch to her one year birthday.  I am overwhelmingly amazed at God's goodness to us and thank Him for each precious moment we have been given with this little girl.  She weighed 10 lbs. / 10 oz. today and continues to fight and grow, tiny though she still may be.  Happy Eleven Month Birthday, Noelle!!  We love you!!!

{Although she is still on oxygen 24/7, she is doing well enough for us to remove the cannula for short moments of time, such as snapping pictures. }

If you are local and would like to help a relief project for New Jersey this week, please check out this page and do what you can to assist this effort.  

***Do not forget there is only one week left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #7}

Thanksgiving Challenge ~ Day #7

Topic: Noelle
Title: Soft Tufts of Hair

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}

This first week of the Thanksgiving challenge has been an encouragement to my heart, especially in the midst of a divided and hurting world around us.  So much has happened on a large scale this week as our country became the focus of the entire globe when tragedy struck through Hurricane Sandy and then again as our nation selected a leader for the next four years.   

~So Much Hair!~

We have been bombarded from all sides, through every avenue of social media; and although I am thankful to be informed, to have the ability to reach out and help in a small way, or to cast my vote and take a stand {regardless of the outcome}, I am especially grateful at times to escape from the chaos into my little corner of this world, my home, with the peace of Christ satisfying my heart and a sweet little bundle of grace filling my arms.  She is such a constant, physical evidence of God's grace and goodness to me; and I am glad to have the persistent reminder, especially when all is not right in the world around me.  As we cuddled this morning during her first bottle of the day, the sun streamed through the window, highlighting her soft, downy hair; and I suddenly realized where she is sending all of these calories I have been cramming into her!  She is growing out her hair, thicker and faster than I have ever before seen!  My favorite are the little new strands that stick straight up, not being long enough to lay flat just yet, and seen only when the light bounces and catches them at just the right angle.  One moment we are certain it is dark in hue; and then the light changes, revealing what appears to be a pretty, strawberry blonde.  So the final color is yet to be determined, but we are enjoying this phase of downy soft tufts of hair appearing almost daily across her little head.  In the midst of so much turmoil and struggle, I was thankful to take pleasure in something so simple and soft as brand new hair on the head of a sweet, growing baby.

~Smiles for Mommy~

If you are local and would like to help a relief project for New Jersey this week, please check out this page and do what you can to assist this effort.  

***Do not forget there is just over a week left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #6}

Thanksgiving Challenge ~ Day #6

Topic: Noelle
Title: Lock Down

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}

We just recently completed our first month of lock down {explained here}; and I must say that it was not what I thought it might be.  I pictured long days and dedicated play time.  I imagined lots of extra snuggles and reading books together.  Of course a spotless home, a plethora of baking and cooking, time to write, and so much more was on the list as well.  Some of these things have happened, but usually not the way I dreamed or planned.  Cooking dinner is a regular occurrence {and a mostly enjoyable one after months in the hospital and weeks of "quick" cooking in between doctor appointments}; sweet snuggles happen often, although I can never have enough of those; and we certainly have more play time than ever before.  But in the aftermath of Hurricane Sandy and seeing the tragedy that so many have experienced, I am reminded even more to be grateful for this lock down period.  Many in that situation would love to trade places with me, to be required to stay in their home, to have the ability to cook dinner once again for their family, to wash loads of laundry, to scrub the toilet, to do the "mundane."  It will happen again.  They will move on and rebuild and create a new normal, but their lives will never be the same, both for bad and good; and the road to that new normal will be long and hard.  So today, as I am confined to my home with my sweet miracle baby, I am grateful for this mandatory period in our lives and the "mundane" that I so often take for granted and sometimes, ashamedly, even complain. I am thankful for the help I have received in the form of my mom picking up groceries and running errands.  I am excited my husband has a good job and is able to be in class, finishing his degree and endeavoring to provide well for us.  I am glad to still be allowed to vote via an absentee ballot.  And I am especially enjoying my opportunity to hold a precious little girl and have an "excuse" to be with her all day long.  Life could not be sweeter.

If you are local and would like to help a relief project for New Jersey this week, please check out this page and do what you can to assist this effort. 

***Do not forget there are less than two weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #5}

Thanksgiving Challenge ~ Day #5

Topic: Noelle
Title: Growth

{If you are new to this challenge~which is not your typical Thanksgiving challenge, you can catch up on the details here, and please feel free to join along at any time...}

  

For this challenge, I have encouraged many of you to choose something that is currently a trial in your life and focus on aspects of it for which to be thankful; and because I myself have some of those challenges in Noelle's situation, I will be weaving in some of these items during this thirty day challenge.  

 

To be completely honest, I still have days where I struggle with Noelle's overall lack of growth.  For a mom of a micro-preemie baby, it can be stressful to adhere to a strict feeding schedule, attempting to cram as many calories possible into my baby during the day, and yet still yielding such small results for my efforts.   It has gotten easier.  Each pound that we have reached has lessened the stress level, but I think I often feel personally responsible for her growth, or lack thereof.  Of course the severe reflux has not helped issues along the way since we have had to experiment with her intake and medication levels in order to try and keep food down; and she is also burning a lot of calories during her waking moments since she never.stops.moving!  A hand is always waving or a foot is constantly kicking, and these are things we would never want discourage, especially developmentally.  Until last week, I thought we had finally crossed a hurdle.  Noelle had finally averaged a pound per month by her ten month birthday and had experienced her best two month growth period ever.  We made it past the sleep study and seemed to have the reflux mostly under control, and I really thought we would finally cruise a little faster, or at least maintain a more consistent growth rate.  But all of that changed at her appointment last Monday when we discovered she had gained only five ounces in three weeks, weighing 10 lbs./4oz.  Making it even harder, I know of so many other micro-preemie babies who, once they reached "term" and arrived home, started growing like weeds; and now you would never guess that they spent months in the NICU when they were first born.  So there have been discouraging moments and days, endless efforts, additional feedings, various sleeping positions, and even tears; but in the end, I have to remember that Noelle's growth is not my responsibility.  It is God's.  Of course this does not negate my responsibility as a mother to feed and care for my little girl; but ultimately, God is growing Noelle, not me.  He has determined her size and weight and her "normal," and I must relax and remember that her growth and progress will not happen by the chart.  So instead, I choose to focus on God's continued goodness, especially in her growth, and never forget the place in which we started.  Today, she weighs 10 lbs./8oz.; but in perspective, she weighs 168 ounces or 14 times her birth weight!!  Now that is something for which to be thankful!!

***Do not forget there are less than two weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #4}

Thanksgiving Challenge ~ Day #4

Topic: Noelle
Title: Noelle & Her Daddy

{If you are new to this challenge, you can catch up on the details here, and please feel free to join along at any time...}

~Daddy's Girl~

While I am quite certain that my little daughter loves me {as much as is possible for a ten month old baby}, there is a certain person in this household whom she absolutely adores.  She is a "Daddy's Girl" through and through, and I would not have it any other way.  Their connection began before she was ever born, his voice generating most of her kicking movements throughout the pregnancy.  Watching their relationship continue to develop has been a joy for me; and even though he gets far less time with her during the week than I do, she never ceases to be amazed and awed by him.  It is how it should be with little girls and their daddies, and I hope she always has a special connection with him.  He is an incredible daddy, and I thank God for him and the father that he is to our little girl.  I could continue writing; but tonight, I think the pictures say it all...we are truly blessed.

~Daddy showing me how to find all the hidden secrets in my book!~

~Blurry, but the look of laughter is still captured~

***Do not forget there are less than two weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #3}

Thanksgiving Challenge ~ Day #3
Topic: Noelle
Title: Spitting

{If you are new to this challenge, you can catch up on the details here, and please feel free to join along at any time...}

Yes, you read the title correctly.  I have actually shocked myself in being thankful for something I never thought possible as Noelle has added a new trick to her bag {you can see her others here and here}.  Of course, once we started videoing, she first acted as if she had no idea what we were referencing and just did one of her old tricks; but she finally cooperated and showed off what she now does all.the.time.  It is often non-stop from the moment she wakes up, and I hear her in the cradle doing that more often than any other kind of noise!  While I know we will soon need to train her not to spit {especially when it turns into spitting food!}, for now I am enjoying this as yet another sign of her development, while she explores new sounds and attempts to copy what we do with our own mouths.  She is doing so well, and I am constantly amazed at the changes I see with her, almost daily sometimes.  So as strange as it is, today I thank God for Noelle's spitting and wonder if perhaps it puts a smile on His face too.

***Do not forget there are less than two weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Giving Thanks Challenge ~ {Day #2}

Thanksgiving Challenge ~ Day #2
Topic: Noelle
Title: Tiny Fingers

{If you are new to this challenge, you can catch up on the details here...}

We love things that are miniature.  People everywhere never seem to tire of stopping to ooh and ah over things or people that are tiny.  I think that is part of the attraction with babies; they are miniature versions of us, and there is something unique and special about that, different than any other type of miniature dog or toy.  We are fascinated with babies' tiny ears and mouths, and we count all their toes; we marvel at their sweet little eyes and their itty bitty noses.  But it is their fingers which you often find us touching and holding more than anything else, I think because it is one of the first things they use to respond back to us.  That sweet "grab and hold" reflex warms our hearts; and you often find people reaching out to babies' hands, knowing that those little fingers will grab tightly onto theirs in an immediate response.  Noelle's fingers are extra special to me.  I think partly because after she was born, it was really the only part of her which we touched for many days; and she responded to us.  Her fingers were the tiniest I had ever seen in my life; her entire hand was barely the size of my pinky nail.  She could not grab onto our fingers the way most babies could, but it did not mean that she did not try!  It was through this touch, between our fingers, that we physically communicated that we were with her, encouraging her to fight hard with us by her side.  But there is another distinct reason why I thank God for these darling fingers.  I am not sure we ever publicly shared this detail since it was the least of our concerns at the time; but at our first high-risk ultrasound, one of the issues they believed they saw in Noelle's development was that her fingers appeared to be deviating to one side, at least on her left hand.  At the time, they were convinced it was yet another sign {of the many they had seen} that pointed them to the Triploidy diagnosis.  As we went through many other ultrasounds through the following weeks, they were never again able to get images of that hand; and so it was yet another thing we would have to wait and see, if she even survived the pregnancy.  Still, with all the other grave concerns she was facing, it was not the first thing I remembered after she was born.  In fact, I think it was later that night or the next day before I thought of it and asked Tom, "what about her fingers?" and received the reply {with a huge grin}, "they are absolutely perfect."  It is a small thing in comparison to all of the issues she has overcome, but these perfect, petite fingers {which are now giant sized compared to when she was born!} are a constant reminder of another evidence of God's grace in our lives; and today, I thank Him for them.

***Do not forget there are only a couple of weeks left to submit your entry for the book project for Noelle's birthday.  You can read about the project and the deadline by clicking here .  We are enjoying the submissions we have already received but would love to hear from you, if you are willing to participate.  Thank you so much for helping us make Noelle's first birthday a special time of remembrance!!***

Stopping to Snuggle

This is the first week that I truly feel as if we are on lock down.  The past few weeks have still been full with a couple of doctor appointments, the sleep study, and Tom having his wisdom teeth removed {which, if I were a "mean" wife, would have been plastered all over the internet in video form...suffice it to say that Tom under anesthesia is quite entertaining!}.  My mom also started her new jobs, so we have all been adjusting to the various schedules that occur around here.  I have long been looking forward to this week and hoping to get much accomplished around the house.  Still, many of the things I plan to do never seem to get done during the day, or they happen on a day which I did not expect.  I am really on no one's schedule but my own {well, Noelle's, that is}, but some days it seems to be a great accomplishment just to grab a shower or make dinner.  I know this is normal for moms, and I truly love falling into that category now; but some days I find myself putting Noelle in her swing or her bumbo seat or in her cradle for a nap, just so I can get something done.  There is nothing wrong with that; in fact, she needs times like these to learn to play by herself or fall asleep on her own {which she does quite well, thanks to the NICU}.  But today, it was time to stop.  Time to stop and just be with her.  It happened in the form of grabbing the camera and talking and playing with her as I tried to capture some images; it also meant holding and snuggling her as she fell asleep for her morning nap.  These are moments and days I will never get back, and I want to capture them before they are gone.  Because stopping to create these memories will someday be one of the sweetest treasures I hold.

{P.S. We will keep reminding about the book project through November 15th.  We are so thankful for the entries we have received but would love to hear from more of you, if you are able to contribute.  We really appreciate the time and love so many have you have spent on this project!  Keep them coming!!}

~Captured Moments from Today~ 

We tried on a special outfit from Aunt Sara...

Then we pulled out the headband from Grandpa & Grandma Aguiar and caught a few more...