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UPDATE 11/15:
We had another ultrasound today and the results were different yet again. The doctor is actually calling Noelle a "little miracle baby" and offering hope for the very first time!! They were very pleased with the way her heart has formed in the last few weeks, and it was unexpected. There still is an issue with one part of it, but now they are thinking it may be an "easy" fix that will not require open heart surgery. She still is extremely small and needs to gain about 150 more grams for them to be able to help her outside the womb, but the doctor was very encouraged with the growth that she did see. The blood flow through the cord is still not normal/great, but it has not worsened as they expected it too...so far. There still are a couple of other issues which they believe are present but they don't have a clear picture what those really are or what it means for her life, after she is born. Basically because they still do not have a diagnosis, it's still very difficult to give a prognosis. But our doctor was smiling at us today! The tone was completely different than any other appointment the last 2 months. They are trying to schedule us to see a prenatal cardiologist on Thursday who can look at Noelle's heart and better diagnose what the condition might be and if/how it can be solved. There are still many unknowns, but thankfully those are not unknown to God. Whether the outcome is still as originally predicted or whether He is changing that, we're thankful that we can continue to rest in His goodness. We went from the beginning of the appointment, being advised that based on our last ultrasound there was a good chance they would not detect the heartbeat today...all the way to the doctor smiling at the end and saying she never thought she would see us come this far, especially based on our last 2 ultrasounds. Again, thank you for standing by us through all of this and continuing to pray. We are learning to rest and wait on Him more than anything right now since the news is ever changing and no one here knows the real answers. It's amazing how much peace there is amidst that. We will continue to keep you updated and let you know if we end up seeing the cardiologist on Thursday.
With much love and appreciation,
Tom and Jill
UPDATE 11/15:
We had another ultrasound today and the results were different yet again. The doctor is actually calling Noelle a "little miracle baby" and offering hope for the very first time!! They were very pleased with the way her heart has formed in the last few weeks, and it was unexpected. There still is an issue with one part of it, but now they are thinking it may be an "easy" fix that will not require open heart surgery. She still is extremely small and needs to gain about 150 more grams for them to be able to help her outside the womb, but the doctor was very encouraged with the growth that she did see. The blood flow through the cord is still not normal/great, but it has not worsened as they expected it too...so far. There still are a couple of other issues which they believe are present but they don't have a clear picture what those really are or what it means for her life, after she is born. Basically because they still do not have a diagnosis, it's still very difficult to give a prognosis. But our doctor was smiling at us today! The tone was completely different than any other appointment the last 2 months. They are trying to schedule us to see a prenatal cardiologist on Thursday who can look at Noelle's heart and better diagnose what the condition might be and if/how it can be solved. There are still many unknowns, but thankfully those are not unknown to God. Whether the outcome is still as originally predicted or whether He is changing that, we're thankful that we can continue to rest in His goodness. We went from the beginning of the appointment, being advised that based on our last ultrasound there was a good chance they would not detect the heartbeat today...all the way to the doctor smiling at the end and saying she never thought she would see us come this far, especially based on our last 2 ultrasounds. Again, thank you for standing by us through all of this and continuing to pray. We are learning to rest and wait on Him more than anything right now since the news is ever changing and no one here knows the real answers. It's amazing how much peace there is amidst that. We will continue to keep you updated and let you know if we end up seeing the cardiologist on Thursday.
With much love and appreciation,
Tom and Jill
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