***Written by Chris McDowell, Jill's Mother***
Today brought mixed emotions. Noelle is tolerating the reintroduction
of the feedings very well. They were to increase the amount they are
giving her sometime today. The amount they are raising to is the amount
they originally gave her, but she has done well the last 24 hours so
they feel her system may be adapting.
They are "bumping down"
the ventilator setting. There is one area of her lung that looks to be
"lagging" behind. It is believed to be because the ventilator is doing
too much of the work and her oxygen saturation levels are good so they
will back the ventilator down to do a bit less which in turn should make
Noelle's lungs work more and thus continue to mature.
She is on the
medication for the hyperthyroidism. Hopefully we will start seeing the
results of this in the next couple of days -- blood sugars more steady,
the slight "bulging" of her eyes receding, and her gaining more weight
just to mention some. She has put on a bit of weight.
She was awake more today and looking around.
Major prayer concern (along with the regulars) is that a new doctor was
on service today and expressed concern about the comparison of last
week's ultrasound on the brain (which we've been told was fine) to this
week's ultrasound of the brain. He is concerned there might be an
increase in fluid in the brain -- which could be very problematic. He
is asking for a pediatric radiologist to review it, but in the meantime
Jill and Tom are in limbo and not really sure what this would mean nor
what to expect. Lack of sleep, recovery from C-section and for Tom
going back to work this week -- it's all a bit overwhelming. They are
praying and just trying to stay focused and not react. The doctor that
was the neonatologist present for Noelle's birth is on duty tomorrow so
they are going to meet with him and go over some of this "stuff" in
detail with him tomorrow (as long as he doesn't get called to an
emergency delivery or such).
I know they would greatly appreciate
everyone's continued prayers as all this continues to get worked out and
figured out. Noelle is so far away from being "out of the woods" that
it can be overwhelming not knowing what God actually has in store and
like Jill said, "sometimes it's not even
about you, but what God is trying to accomplish through you in someone
else's life". It's just not always fun walking the road and even more
difficult when tired emotionally and physically. They are doing well,
but I thought I'd share a bit more so you all could pray a bit more
specifically right now. Thank you so much and God bless.
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