We had yet another really good day with Noelle. She is a completely
different baby than she was a week ago, and the doctors and nurses are
just amazed!! It is incredible to go from one end (your nurse crying as
she says good bye to you for the evening after a really bad day) to the
other end (everyone just smiling and happy about her progress), and we
know that it is only of God that she has made a complete 180* turn this
week. Thank you for your persistent prayer before God's throne for
her--God truly uses it in our lives to bring glory to Him and cause us
to recognize our complete dependence on Him for every step of life.
They continued to wean her ventilator settings today since she is doing
so well, and basically she is now just on the minimum. They could be
more aggressive about weaning her and extubating her, but since she is
still so small, the doctor is not anxious to do that--everything is to
be done in tiny baby steps with her. So, she will probably sit at these
settings until her oxygen level is down to 21% (this is room air / what
we breathe). She has been sitting anywhere between 25% and 35%
consistently so she really doesn't have far to go for that!! We don't
want them to rush things, but we are really excited about her being
extubated soon...just the fact that it is starting to be discussed is
incredible, especially after last week!! Her echocardiogram revealed
that her heart is still continuing to improve. They are going to
continue her heart medication until it is more improved, but they were
able to wean her nitric oxide more based on what they saw. That is
still a matter of prayer and yet a huge praise at the same time!! We are
so grateful for God's evident hand on her life. We are really enjoying
our time with her, and it is fun to start seeing her personality come to
life. She definitely knows what she likes and does not like!! She
seems to be a content baby as long as she is not being poked or prodded
or held down in any way. The nurses are amazed at how strongly she
pushes against them when they are trying to do a procedure on her!! I
hate to see her crying and pushing against them, and yet I am thankful
that she isn't just lying there and being apathetic about it. On the
other hand, she is really responsive and loves to hold and squeeze our
fingers or follow our voices with her eyes--so sweet to watch. She also
has made it clear that she prefers to sleep on her tummy as opposed to
her back, and she likes her back to be rubbed as well. These seem to be
such little things in one sense, and yet it is fun to see some of these
traits that we know will be evident for the rest of her life. We
continue to thank God for our tiny miracle and praise Him for what He
has done and what we have faith He will continue to do.
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