Noelle turned 4 weeks old today, and I wish we could be more excited
about that and not be facing what we are currently. Nothing really has
changed since the last update. She is somewhat stable at this point and
had an okay afternoon without desatting. About 5:00PM she started
struggling with her oxygen saturation again so they suctioned her, moved
her position and adjusted her pressures. It helped some, but she still
is sitting just under where she should be with her saturation, so the
alarm is constantly beeping on the monitor right now. They have started
her on a different medication to hopefully help her heart constrict
better, and they will check the echocardiogram tomorrow to see if she is
responding at all to the treatment. For those who have mentioned it or
asked, we do have a little recorder in her isolette (thanks to our
Flock from our church) on which we recorded ourselves singing to her,
reading to her and praying with her, so we push play on it and the
nurses do as well every so often so that she hears our voices even when
we are not there. It's down to a matter of waiting right now...waiting
to see how her body responds to the treatment; waiting to see how God
chooses to work in and through this situation. I wish we could respond
to each person individually and thank you for your prayers--you will never
know the encouragement it is to our hearts. Thank you.
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