Monday, February 20, 2012

NICU Day 75 ~ (February 20th)

Wow.  Day 75.  If I had one word to sum it up, it would be "weary."  This past week has been the longest yet, outside of the week Noelle was so sick with her heart issues.  We have sincerely tried our hardest to adapt to our new surroundings and deal with her current situation as best as possible, but it seems that circumstances happen almost each day that make us anxious to get back to Forsyth.  Of course none of this is intentional, and all of the individual people which we have met or worked with here are really nice, but when it comes to your baby, "unintentional" just is not okay.  Everything should be done intentionally and should be closely watched.  The NICU is a field where human error just is not and cannot be tolerated like it might be in other fields.  Today, it was an infiltrated IV, and I cry every time I see her poor little arm, swollen to twice its normal size.

~Poor Little Swollen Arm~

Of course some of these things "just happen" at times, but often (like today), they could have been avoided had things been watched more closely or done differently.  So please pray for us as we talk with our neonatologist tomorrow about transferring back to Forsyth and having her monitored from there.  The same opthamologist would be examining her eyes in either place, and although it would mean a transfer back if for some reason she needed a repeat surgery, this seems less traumatic to us in light of the entire picture.  Please pray for gracious spirits and wisdom as we seek to have our tiny daughter in the best place possible for her care and growth.  Is God still sovereign over all that has happened?  Yes indeed.  However, that does not mean we have to stand idly by and let "whatever" take place.  I especially hate being put into positions to deal with things like this, but I am beginning to learn what the term "mother bear" means, and while we do not like the position, we will do whatever necessary to insure the best possible situation for Noelle.  Thankfully, God already knows what will happen tomorrow and how this will play out, and we can continue to rest in Him.  Thank you so much for your prayers.

4 comments:

  1. I was so touched by your comments! Your thoughts on being a "mother bear" will never change, even as your daughter gets older! God gave you that mother's heart, that father's heart and it is a joyful thing to witness. We will be in even MORE fervent prayer for your sweet little daughter that she gets the best care available.

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    1. misspelled some words. Reposted ...

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  3. Hi Noelle,
    You do not know me but I have been reading your parent’s posts for the past 2 weeks now and I must say you are one very blessed young lady. I look forward to meeting you some day as the Lord would tarry.
    Meanwhile, you keep fighting because right now you not only have your incredible parents praying constantly for you but you have thousands of people also rooting for you in prayer as you grow every day. I am now excited to receive the daily posts about your continued improvements and miraculous growth!
    Right now the prayer is for you to return to Forsythe and that is my current prayer, too but what is so neat is your parents are depending on God and He will ultimately allow whatever to happen happen and your folks are going to love HIM no matter what. That is a huge! You have some great parents there. Now your job is to get stronger and stronger and be a beacon of life for so many who do not yet know the Lord. God has a special plan for you and I can hardly wait to see how HE plans to do it!
    Your mama is a good mom! You are so blessed to have her there and God chose her special for you for such a time as this!
    God bless you and your parents.
    My name is Mrs. Ilah hardesty and I live in Long Beach, CA …

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