***Written by Chris McDowell, Jill's Mother***
Today was a "good" day. Jill is doing well and no problems with bleeding. They keep checking her blood and she has to still have a hep lock in for safety backup. Someone asked how far along Noelle is. She is 29 weeks, but last measurements a little over a week ago she was only measuring 22-23 weeks in size. She is the smallest baby this ...hospital has had. One baby born just a little bigger than Noelle just went home this week.
Her oxygen levels were doing so well last night they dropped her on down to 21% oxygen and Noelle's O2 levels began to drop so they bumped her back up to 75%. She responded well and they weaned her back down today and she is presently on 24% which the doctors are very pleased with.
They are still running detailed blood tests on her DNA, but so far the US showed mild fluid in the kidneys which they believe could even be resolved now because she has good output. The preliminary on the ultrasound on the brain is that everything looks good. The doctor just want to get one more specialist's opinion on it, but the doctor said they don't believe there is anything that they can see. The nurse told Tom tonight that they got the results back from the ultrasound on her heart and everything appears normal. They should get a full report in the morning when the doctors do grand rounds.
They have been taking blood to check oxygen levels and the genetics doctor took to run DNA testing so they will probably give her a tiny transfusion tonight, she was 1/10 of a point below the level they want a certain blood level at.
Her blood pressure has been running a bit low and they have been giving her a drug called Dopamine in small increments. This evening it was finally up to a level that they are happy with.
They are pumping all kinds of nutrients into her along with some "fatty emulsions". I guess last night she wasn't tolerating the fatty emulsions well so they have backed off for now and will reintroduce later. They hope to insert a feeding tube in the next few days and give her breast milk.
She appears to be very responsive to Jill and Tom's voices and continues to be called feisty by the doctors and nurses. They can't believe she is so active and responsive.
The medical team has been great, but they continue to lovingly share with Jill and Tom that because Noelle is so tiny she is still "very sick" and anything and everything can be a factor in causing her risk. It is minute by minute and they greatly appreciate everyone's prayers, support, love and care. They are thankful for every minute God has allowed them to have with Noelle.
Good night to all.
Today was a "good" day. Jill is doing well and no problems with bleeding. They keep checking her blood and she has to still have a hep lock in for safety backup. Someone asked how far along Noelle is. She is 29 weeks, but last measurements a little over a week ago she was only measuring 22-23 weeks in size. She is the smallest baby this ...hospital has had. One baby born just a little bigger than Noelle just went home this week.
Her oxygen levels were doing so well last night they dropped her on down to 21% oxygen and Noelle's O2 levels began to drop so they bumped her back up to 75%. She responded well and they weaned her back down today and she is presently on 24% which the doctors are very pleased with.
They are still running detailed blood tests on her DNA, but so far the US showed mild fluid in the kidneys which they believe could even be resolved now because she has good output. The preliminary on the ultrasound on the brain is that everything looks good. The doctor just want to get one more specialist's opinion on it, but the doctor said they don't believe there is anything that they can see. The nurse told Tom tonight that they got the results back from the ultrasound on her heart and everything appears normal. They should get a full report in the morning when the doctors do grand rounds.
They have been taking blood to check oxygen levels and the genetics doctor took to run DNA testing so they will probably give her a tiny transfusion tonight, she was 1/10 of a point below the level they want a certain blood level at.
Her blood pressure has been running a bit low and they have been giving her a drug called Dopamine in small increments. This evening it was finally up to a level that they are happy with.
They are pumping all kinds of nutrients into her along with some "fatty emulsions". I guess last night she wasn't tolerating the fatty emulsions well so they have backed off for now and will reintroduce later. They hope to insert a feeding tube in the next few days and give her breast milk.
She appears to be very responsive to Jill and Tom's voices and continues to be called feisty by the doctors and nurses. They can't believe she is so active and responsive.
The medical team has been great, but they continue to lovingly share with Jill and Tom that because Noelle is so tiny she is still "very sick" and anything and everything can be a factor in causing her risk. It is minute by minute and they greatly appreciate everyone's prayers, support, love and care. They are thankful for every minute God has allowed them to have with Noelle.
Good night to all.
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