After a bit of a rough night last night, Noelle recovered well and had a pretty good day today. Her acid reflux is still causing issues, but they were able to give her something to help clear out her intestines last night, and that seemed to help her for now. She had a busy night with x-rays and lab work, but the results from both of those came back normal, so we're grateful that she seems to be feeling better today. Many have wondered about her acid reflux and what might affect her, but after much discussion with the medical staff, it is not related to my diet. The acid reflux is caused because she is so tiny, and her stomach just has difficulty handling all of that milk at one time. She needs all that milk to grow, and yet the high amount causes the acid reflux, so "we can't win for losing" on this one. Thankfully, she is continuing to grow and now weighs 870 grams / 1 lb. 14 oz. We are getting so close to 2 lbs. and are excited to be reaching another milestone with her!! Our time with her today was really special. She is becoming so alert and responsive to us, and I thoroughly enjoyed watching her respond to Tom as he read to her this afternoon. She completely turned her head toward his voice and just stared with eyes wide open. It was incredibly sweet to watch such a tiny little person respond like that. She definitely knows her daddy!!
~Listening to Daddy Read~
We also discovered today that "when the parents are away, the nurses will play!!" Noelle has a little stuffed giraffe given to her by Kaci, one of our nurses' daughters, and it sits on her isolette. We have commented before, that she is small enough to ride it, but last night our nurse decided to have some fun and play with Noelle and her giraffe. The result was a CD of pictures for us entitled "Rodeo Noelle," and the pictures are just too cute not to share. We love our nurses and are glad they have fun with our little girl while they are taking such good care of her.
Thank you for continuing to pray for our sweet little girl, and we look forward to sharing more of these moments that God gives us with her.
My heart reaches out to your family... having just had a baby in november I can imagine what you must be going through my heart breaks for the pain you guys must be going through but your family truly is an inspiration you guys have so much courage. I will continue to follow your family's progress and to pray for all of you especially noelle!
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I saw your story on Fox 4 in Kansas City the other night. Wonderful story! I'm praying for everyone. Noelle is an absolute doll!! You are very blessed! I have a son with Down Syndrome who is 19 now. He spent some time in the NICU when he was born too. There are some great nurses out there who really love what they're doing, and it shows!
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