God was very gracious in giving us another good day with Noelle. She
actually came off her jet ventilator today and is now on a conventional
one. Hopefully she can stay off this time and continue weaning down
until she is breathing completely on her own. Typically they go from
the ventilator to a CPAP machine so we are hoping that can happen soon.
She did not gain any weight but she did not lose either, and they
increased her feeds once again so hopefully that will help her continue
to gain weight. She really is starting to look and act like a normal
term baby--which is fun to watch. Today she was even a little fussy
(although we cannot actually hear her crying with the tube down her
throat, we can see her little face all screwed up and her mouth wide
open when she is crying), but mommy was able to settle her down by
rubbing her back or patting her on her little diaper. As far as her
heart, they are planning on repeating another echocardiogram on Friday
so we are praying that continues to show improvement as well. For us,
it is taking some time to figure out a new "normal" schedule. With so
many ups and downs the last couple of weeks, this is the first week for
us to really get back to some sense of reality at home...bills, laundry,
etc...all the stuff that does not stop just because your life seems to
be on hold for the moment. Plus, we are on the same schedule as any
other family with a term baby which they are nursing, and that includes
middle of the night "feedings" as well. It is the one way we really can
be involved with Noelle right now in contributing to her care. As always, thank you so much not only for praying but for
letting us know that you are praying...it's an incredible encouragement
to our hearts.
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